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 My friend octoberskies has asked me to post a prayer and general assistance request for a little boy named Jacob who has recently been diagnosed with the disease known as Hypophosphatasia.Toby has given me a link here that gives some more details about the disease as well as ways you can help Jacob to receive treatment. 'Depending on the severity of the skeletal disease, there may be deformity of the limbs and chest. Pneumonia can result if chest distortion is severe. Recurrent fractures can occur.Teeth may be lost prematurely, have wide pulp (inside) chambers, and thereby be predisposed to cavities. As yet, there is no cure for hypophosphatasia and no proven medical therapy. Some medications are being evaluated. Treatment is generally directed towards preventing or correcting the symptoms or complications.' Toby is involved with this because she is a friend of the band, State of Man, whose drummer little Jacob is related to. Please visit this link or octoberskies' site to find out more about how you can help. The goal is to raise enough money to cover medical expenses and to send Jacob to the Shriners Hospital in St. Louis, MO where they have a special department set up to study and treat people with this baffling disease. Even if you canny donate, you can still remember Jacob in your prayers and thoughts. No child should have to be going through this, and when you think that there is no cure at this time, it's very scary. Jacob needs our help. Thank you. :) |
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